Tagged: disability rights

Disability Studies Conference 2010 Webcast Programme


For the first time, the 2010 biennial 5th International Disability Studies Conference will broadcast their keynote speakers between the 7th – 9th September, 2010. This conference, held in the UK in alternate years with the Nordic Network on Disability Research, is arguably Europe’s foremost conference on disability studies, so the opportunity to view from afar is very welcome.

Presentations can be viewed live via:  http://www.lancs.ac.uk/iss/digital/disability/. Note: The conference will be broadcast in Flash ‘to maximise browser compatibility’ so it’s time to put down your iPhone.

In this post, I introduce speakers and their presentation times. This information is available via the conference website, however, as the conference pages do not link to external websites, and information about the speakers and their topics are listed across different media, for my own benefit I’ve taken the liberty of reproducing, linking and extending speaker information here.  Please note, all links open in a new window. All times given are British Summer Time (GMT +1 hour).

Tuesday 7th September: 11:30-12:30 GMT. Caroline Gooding: Equality Consultant and Special Adviser to RADAR

Keywords: Disability, Law, Employment, Rights, Discrimination

Title: “Will the new equality duty deliver progress for disabled people?”

Abstract: Great claims were made for the disability equality duty when it was introduced in 2005. The race, disability and gender equality duties share a common ambition to root out institutional discrimination and change the culture of public sector organizations. Each of the three equality duties was framed slightly differently, with the disability equality duty having a greater emphasis on the involvement of disenfranchised groups and a clearer delineation of what improved equality would mean.There were some initial indications that the disability duty had begun to deliver on its ambitious agenda. However, the duties rely on the Equality and Human Rights Commission for effective enforcement. The operational difficulties experienced by that body, coupled with its failure to provide a unifying understanding of equality for the different groups with which it is concerned, appears to have led to a faltering in the momentum.The introduction through the Equality Act 2010 of a unified equality duty extending to sexual orientation, age and religion and belief presents a new challenge for those working to promote disability equality, with concerns that it waters down the overall requirements placed on public bodies, and fails to clearly reflect the distinctive barriers confronting disabled people.

Caroline is a long term disability rights activist and for more than ten years was Chair of the Trade Union Disability Alliance. She was formerly Director of Diversity Works for London, and  Special Advisor to the Disability Rights Commission where she led on the Disability Equality Duty, Goods and Services and Legislative Change. She is qualified and has practiced as a solicitor. Her publications include:

  • Disability Rights in Europe, from theory to practice Essays in European Law (2005);
  • Blackstone’s Guide to the Disability Discrimination Act (1995);
  • Enabling Acts Disabling Laws, Disability Rights in Britain and the United States (1994).

Tuesday 7th September: 17:30-18:30. GMT, Liz Crow: Writer, director and producer at Roaring Girl productions

Liz Crow during Plinth Performance
Artist and Activist Liz Crow is pictured during her performance on the Plinth in Trafalgar Square. She wears a Nazi Uniform and is seated in a Wheelchair. This performance highlights the Nazis' Aktion T4 Program, an untold history of the holocaust during which the Nazis developed and deployed the machinery of the holocaust, killing some 275,000 disabled people.

Keywords: Disability, Arts, Film, Drama, History.

Title: “Resistance: transforming the future”.

Abstract: In this seminar, Liz will talk about her work and discuss what it means to create new cultural representations of disability as a tool for change.

Liz is a writer-director working with film, audio and text. Interested in drama, life stories and experimental work, she is drawn to the potential of storytelling to trigger change. Described as “a director of real visual flair”, her work has been praised for its ability “to get under the skin of a subject”. Liz’s work has shown at Tate Modern and the British Film Institute, as well as on television and at festivals internationally. Through a four-year NESTA (National Endowment for Science, Technology and the Arts) fellowship, she explored ways to combine her creative practice and political activism. Liz is a graduate of the Skillset Guiding Lights scheme where she was mentored by Peter Cattaneo (The Full Monty).

Liz is perhaps most famous for her performance on the Fourth Plinth in Trafalgar Square, London, as part of Anthony Gormley’s One and Other project.  The Guardian’s Top 10 From Trafalgar list, cites Liz’s protest as amongst the highlights.  A film about Liz’s performance is linked below. You can also watch Liz’s hour on the Plinth in full via the British Library Archive.

[youtube=http://www.youtube.com/watch?v=EfswOExefgw]

EtCetera Issue 483 summarises the performance eloquently if you want to read about Liz and the Fourth Plinth.  Writer Allan Sutherland says “Many of the plinthers have used their hour to espouse favourite causes, be it children’s charities, bee preservation or understanding of chess. But few if any have produced a piece of work as compelling as this, which will undoubtedly remain one of the most significant contributions to Gormley’s project. Apart from the importance of the content, it presented a series of memorable images, carefully choreographed to take advantage of space and time.

Wednesday 8th September 9:30-10:30. Ruth Gould: Chief Executive Officer DaDa (Disability and Deaf Arts)

Keywords: Disability, Arts, Deaf, Theatre

Title: “Disability Arts: Ghetto Blasting?”

Abstract: Disability and Deaf arts are a way of promoting not only ‘arts for art’s sake’, but also to allow deeply held issues from the lives and experiences of disabled and deaf
people to be articulated and expressed through creative means. In an ever changing society, and one where social inclusion has been heralded as an achievement towards a more ‘culturally diverse’ Britain, the contribution of disabled and deaf communities have arguably not been elevated to the same level as other groups. In this talk, we will touch on such things as where it has the ‘movement’ come from, what has been its impact, who are its audiences and more significantly, where is it going?

“Deaf and Disability Arts are important because they allow us to make others think in a different way, breaking through perceptions and stereotypes in order to affirm our place in society.”

Ruth trained in performance arts, speech & drama, dance and mime at Liverpool Theatre School. Ruth has led workshops in Mime, Movement and Drama, and developed full-scale theatre productions. From 1992 Ruth has worked in arts administration and management including; business development for artists in the Creative Industries sector, managing start-up funds for artists, developing Disability Arts projects, and now, CEO of DaDa.

Ruth is passionate about Disability and Deaf arts being celebrated as cultural diversities in their own right. Ruth is also a board member of Liverpool 2008 Culture Company, Vice Chair of The Bluecoat Arts Centre, a council member with Arts Council England North West and co-opted Member of National Liverpool Museums Public Services Committee.

Wednesday 8th September 13:30-14:30. Adolf Ratzka: Activist for Independent Living

Keywords: Disability, Independent Living, UN Convention on the Rights of Persons with Disabilities, policy

Title: “Beyond the Social Model of Disability: An emphasis on disabled peoples’ status as citizens and consumers is needed for self determination and full participation”.

Abstract: The success of disabled peoples’ struggle for self-determination and equal participation in society will ultimately depend on the model of disability to which disabled people themselves and society at large subscribe to. The United Nations Convention on the Rights of Persons with Disabilities and other policy documents emphasize disabled peoples’ status as citizens. Adding the perspective of disabled people as consumers of services implies policies that use cash payments and demand-driven competitive markets for services where previously supply-driven government or quasi-public monopolies for services in kind existed. These developments will increase many disabled peoples’ freedom of choice and opportunities for self-determination and participation.

Adolf Ratzka is an internationally renowned activist for independent living. He is known for leading the Swedish Independent Living movement. He set up the pilot project on personal assistance, which was to become the model for the Swedish Personal Assistance Act of 1994. The then Minister of Social Affairs, Bengt Westerberg, invited Adolf to Parliament when the Act made into law. Adolf was the founding chair of ENIL, the European Network on Independent Living, which works for disabled citizens’ personal and political power, for self-determination and against discrimination.

In 1999 he was recognized by TIME magazine as European visionary for the new millennium, mainly for his pioneering work for cash payments replacing services in kind thereby promoting disabled people’s right to self-determination and freedom of choice. Adolf received the European Citizen Award from the European Anti-Discrimination Council in 2008. Also in November 2008 he led an international conference to celebrate twenty-five years of independent living in Sweden.

Thursday 9th September 11:30-12:30. Alana Officer: Coordinator for Disability and Rehabilitation, World Health Organisation

Keywords: Disability, policy, research, UN Convention on the Rights of Persons with Disabilities, international development,

Title: Research and policy working together to improve the lives of disabled people worldwide

Abstract: Disability studies, which emerged from the disabled people’s movement, values engagement and praxis. Yet does it reflect the needs and priorities of the millions of disabled people in the world? Does it provide evidence of what works in policy and practice? The World Health Organization, in partnership with the World Bank, is developing the first ever global report on the situation of disabled people. The World Report on Disability aims to provide governments and civil society with a comprehensive description and analysis of the importance of disability, to characterize the responses currently provided, and to make recommendations for action consistent with the Convention on the Rights of Persons with Disabilities (CRPD). The available scientific evidence suggests that disability studies is far from achieving its potential, particularly in developing countries. This talk will highlight how the CRPD provides an agenda for action, explain why the ICF offers a way forward for applied research and look at how together, we can make a difference.

Alana Officer is a native of New Zealand. She holds a diploma in Applied Science (Podiatric Medicine) from the Institute of Technology in Sydney, Australia; a Master’s degree in Applied Science (research) from the University of Sydney, Australia; and a Masters degree in Public Health from the London School of Hygiene and Tropical Medicine (LSHTM). Prior to joining WHO in July 2006, Ms Officer held a number of technical and managerial positions working on disability, rehabilitation and development in West and Central Africa, Europe, South Asia and the Western Pacific. Ms Officer was the Country Director for Handicap International (HI) in India.

Alana Officer joined WHO in July 2006, and is now Coordinator for the Disability and Rehabilitation Team. She oversees WHO’s work on disability and rehabilitation related to policies, medical care and rehabilitation, community-based rehabilitation, assistive devices and technologies, and capacity building. She is the executive editor of the World report on disability and rehabilitation due for release in 2009.

 

Digital Rights and Wrongs


With the European Elections fast approaching, the Open Rights Group have asked UK candidates what they think about key digital rights issues such as online privacy, surveillance state, open internet and copyright reform.  To view responses, visit the Open Rights Group EU Election pages.

The Open Rights Group is a grassroots technology organisation which exists to protect civil liberties wherever they are threatened by the poor implementation and regulation of digital technology.  This is an important area for advocacy and got me thinking. When we consider digital rights – particularly Internet access as a human right – government action to ensure equitable internet access and close digital divides appears straightforward.  However, the intersection between the internet and disabled people as users is not the sum, total interface between digital infrastructure and disability.

Last year at the biennial Disability Studies Association conference in Lancaster (UK), Australian academic Dr Helen Meekosha presented the keynote Contextualizing disability: developing southern/global theory. This paper advocated global perspectives on disability, challenging gaps in western/northern disability discourse.   Meekosha observes that global levels of disability are not a given, they are dependent on factors such as war, disaster, economics and climate change.  In view of this, the decisions made by elected governments on defence, trade, international aid and the environment have repercussions for levels of disability around the world.  I would argue that digital legislation is bound into this policy ecology.  For example, in environmental terms… (I’m thinking of Nicolas Carr’s assertion that the average Second Life avatar consumes as much energy as the average Brazillian and the revelations that the CO2 emissions of the ICT industry outstrip aviation) …green computing could be concieved as a human rights and disability issue.

However, Meekosha identifies more direct causal effects relating technology and disability, specifically through outsourcing to ‘eSweatshops’.  She also observes:

Disability scholars rarely venture into this territory – leaving these issues to scholars in feminism and international development.

Citing the excellent article ‘A New Front in the Sweatshop Wars?‘ by Farrell & Olsen, (2001) Meekosha highlights the emergence of eSweatshops, dedicated to data processing, as a physically damaging, disabling environments.  Farrell and Olsen scope high-profile academic digitisation projects that have been sub-contracted to countries such as Barbados, India, Mexico and Cambodia whilst observing the lack of any regulation.  In one instance they describe disabled people targeted for employment by a Harvard sub-contractor.  This is a complex area of competing interests, deftly handled by Farrell and Olsen. More recent literature from organisations such as Cafod focuses on manufacturing sweatshops, for ICTs and software. It’s a reminder that digital resources, tools and structures can infringe rights and create impairment, outside traditional views of inaccessible systems and accessibility discourse.